Let me tell you a bit about myself
16 years ago my first child arrived, all was fine but then at 5 months, he was diagnosed with hydrocephalus. This involved major brain surgery and the start of many, many appointments.
5 months after the surgery, I found out I was pregnant with twins. That was a big surprise.
The twins were due in January however they decided to make an early arrival in October.
As a result of the premature birth, my youngest son developed retinopathy of prematurity stage V. His twin sister developed the same at stage three.
This led to my youngest son losing all vision. He has no light perception and no vision at all.
A few months after they returned from NICU we realised that my eldest son had stopped in his development. Within about eight months he was diagnosed with autism.
Within a year we realised our daughter was also behind with her speech. She was shortly thereafter recognised as having speech language and communication needs.
All of this led to us taking a very different path to the one we initially had expected to take. As we watched the parents who had been in our baby clinics and groups all looking at local schools and nurseries, we realised that this was possibly not an option for us.
All three children went to different primary schools. One was only four miles away, one was 17 miles East and the other almost 40 miles West of our home.
This worked ok, generally, as they were all provided with transport. The challenges arrived when sports days and other activities were held on the same day. Or when the school holidays changed and suddenly schools could decide when the holidays would be.
As we were nearing the end of primary school, my youngest son was also diagnosed with autism. This wasn’t such a big shock as we had suspected it for years but people had dismissed our concerns and told us that his behaviour was a “blindism”. Thankfully we had strategies to work with due to our eldest son, so we got by.
I have always said, and this shows my age, it feels like we are the toy known as Weebles. “Weebles wobble but they don’t fall down” but for many of us, falling down is just not an option.
Over the years I’ve had to learn many different strategies to help me to get upright again – quickly.
I have also had to learn strategies to help me stay motivated when exhausted, confused, upset and when all I want to do is stay in bed and hide from the world.
As a Life Coach (who is known as the Queen of Mojo Revival), I like sharing these strategies and ideas with others in the hope that they can help you as much as they have helped me.